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Discovering PHPV/PFV

Discovering PFV: Olivia Penton’s Story

“Can you take one more look at her eye; it really looks small and cloudy to me…” I’d been saying these words since the day Olivia came home for the first time. I had a relatively healthy pregnancy, no complications during delivery, and she was a healthy baby with a beautiful head of dark brown hair. Every time ...

Katia Sanchez

Katia’s Journey

Our sweet girl was born on October 26, 2017 at 1:14PM. She was sassy, loud and very healthy, we named her Katia Zoe.   At around 4 months of age I started to notice that Katia’s right eye would not focus as well as her left eye. I know someone is always telling us to not compare to other kids, but you can’t help ...

What Did I Do Wrong: Liz’s Story

What did I do wrong? This was one of the first questions that came to mind when I found out Eli had PFV. I guess it stemmed from the Ophthalmologist asking my how my pregnancy was and if I had any health concerns during my pregnancy. I didn’t, well nothing substantial, but it still made me think what did I do to cause ...

Discovering PFV: Eli’s Story

Eli was born on 23rd January 2017, he was 1 week early which was fantastic as I was over the heat that the Australia summer was throwing at me! He needed breathing assistance after birth as he had managed to wrap himself up in his cord during delivery; this meant he had to spend 4 hours in the special care nursery for ...

Discovering Olivia’s PFV

Olivia was born 9 days before her due date, in early November. Every parent prepares for his or her new baby to arrive. We made sure the nursery was decorated with pooh bear everywhere, that her crib was built (even though we knew she wouldn’t actually be in the crib for a while) and our house was as baby proofed as ...

The Beginning

  My husband, Dan, and I were so excited for our 20-week ultrasound. We waited anxiously while the technician got everything ready and then watched the screen in awe as she moved the wand over my growing belly, showing us our perfect baby. When the technician was finished, she said she had to show the images to ...

Discovering PFV: Rydon’s Story

July 31st, 2014. A day unlike any other, the day I became a mother. Rydon was born, perfectly healthy; strong and loud at 7 pounds 14 ounces, 21 ½ inches long. Of course, I was a brand new first time mom and scared to death, but he had ten fingers, ten toes, and we were sent home from the hospital with the “all ...