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How Do You Win the Battle with Insurance?

Honestly, this all depends on your definition of winning. If you saw my last post, you know the struggles we have had. I am happy to report that we won our battle. After many, many phone calls and appeals... we finally got better coverage for Scarlett's prosthetic! I consider that a victory but if we ever change insurance... ...

The Frustration with Insurance

It has taken me a while to decide whether or not to share this post. It was written in the heat of a tough moment. Ultimately, I decided to share it because I know there are other parents in our same situation. I hope that the big takeaway from this post is to never give up! Being a Parent Advocate Isn't Always Easy I ...

Discovering PFV: Olivia Penton’s Story

“Can you take one more look at her eye; it really looks small and cloudy to me…” I’d been saying these words since the day Olivia came home for the first time. I had a relatively healthy pregnancy, no complications during delivery, and she was a healthy baby with a beautiful head of dark brown hair. Every time ...

Olivia Reese: Day of surgery

The day we had been waiting for was finally here! Today was the day Olivia would have her retina re-attached and the stalk caused by her PFV would be clipped. The doctor would also check to see how big Olivia’s cataract was in order to determine whether to remove it during this procedure or to wait and do that at a later ...

Katia Sanchez

Katia’s Journey

Our sweet girl was born on October 26, 2017 at 1:14PM. She was sassy, loud and very healthy, we named her Katia Zoe.   At around 4 months of age I started to notice that Katia’s right eye would not focus as well as her left eye. I know someone is always telling us to not compare to other kids, but you can’t help ...

What Did I Do Wrong: Liz’s Story

What did I do wrong? This was one of the first questions that came to mind when I found out Eli had PFV. I guess it stemmed from the Ophthalmologist asking my how my pregnancy was and if I had any health concerns during my pregnancy. I didn’t, well nothing substantial, but it still made me think what did I do to cause ...

PFV Provider of the Month: Joe LeGrand

Welcome back to our 2nd edition of PFV Provider of the Month! This month's provider is Joe LeGrand of LeGrand Associates. They currently have offices in Pennsylvania, New Jersey, and Virginia. Thank you so much Mr. LeGrand for allowing us to share a bit about you with the PFV Community! 1. What drew you to this ...