logo
Microphthalmia

Discovering PFV: Olivia Penton’s Story

“Can you take one more look at her eye; it really looks small and cloudy to me…” I’d been saying these words since the day Olivia came home for the first time. I had a relatively healthy pregnancy, no complications during delivery, and she was a healthy baby with a beautiful head of dark brown hair. Every time ...

Olivia Reese: Day of surgery

The day we had been waiting for was finally here! Today was the day Olivia would have her retina re-attached and the stalk caused by her PFV would be clipped. The doctor would also check to see how big Olivia’s cataract was in order to determine whether to remove it during this procedure or to wait and do that at a later ...

Prosthetic Eye, Here We Come! An Update on Scarlett

Life with a baby is hectic. I would love to say it is so amazing and wonderful all the time... but that's not the truth. It has its moments of wonder, love, and warm fuzzy feelings. It also has dirty diapers, mountains of laundry and, if you have a child with a special need, lots of appointments. We love sharing our journey ...

Discovering PFV: Eli’s Story

Eli was born on 23rd January 2017, he was 1 week early which was fantastic as I was over the heat that the Australia summer was throwing at me! He needed breathing assistance after birth as he had managed to wrap himself up in his cord during delivery; this meant he had to spend 4 hours in the special care nursery for ...

The Beginning

  My husband, Dan, and I were so excited for our 20-week ultrasound. We waited anxiously while the technician got everything ready and then watched the screen in awe as she moved the wand over my growing belly, showing us our perfect baby. When the technician was finished, she said she had to show the images to ...

Why Do You Call It A Prosthetic Eye?

There are many phrases that we grow up with that just are what they are. Until having a child that needs a prosthetic eye, I had always called them glass eyes. I got this from my granny recounting stories of a family member who had a glass eye. Literally, it was made of glass as this was in the early 1900's. It just is a ...

General fact sheet with notebook and a yellow sticky note and blue pen resting on it next to a Mac laptop on a desk

Microphthalmia Quick Facts

Microphthalmia is a condition that commonly occurs with PFV/PHPV. Here are some quick facts on Micro (as it is commonly called by those who have it or who have a child that has it): It is a congenital birth defect whose causes are not always known, although there can be a genetic link predominantly in bilateral cases ...