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Patching and Developmental Milestones

Whenever Olivia and I are patching out in public, we get a lot of people that come up to us and ask about her eye. For the most part, people are so sweet. They ask if it is an injury or something she was born with, they ask if she keeps her window glasses on while she patches (she doesn’t by the way…) and they ask if she ...

How Do You Win the Battle with Insurance?

Honestly, this all depends on your definition of winning. If you saw my last post, you know the struggles we have had. I am happy to report that we won our battle. After many, many phone calls and appeals... we finally got better coverage for Scarlett's prosthetic! I consider that a victory but if we ever change insurance... ...

The Frustration with Insurance

It has taken me a while to decide whether or not to share this post. It was written in the heat of a tough moment. Ultimately, I decided to share it because I know there are other parents in our same situation. I hope that the big takeaway from this post is to never give up! Being a Parent Advocate Isn't Always Easy I ...

Discovering PFV: Olivia Penton’s Story

“Can you take one more look at her eye; it really looks small and cloudy to me…” I’d been saying these words since the day Olivia came home for the first time. I had a relatively healthy pregnancy, no complications during delivery, and she was a healthy baby with a beautiful head of dark brown hair. Every time ...

Olivia Reese: Day of surgery

The day we had been waiting for was finally here! Today was the day Olivia would have her retina re-attached and the stalk caused by her PFV would be clipped. The doctor would also check to see how big Olivia’s cataract was in order to determine whether to remove it during this procedure or to wait and do that at a later ...

Katia Sanchez

Katia’s Journey

Our sweet girl was born on October 26, 2017 at 1:14PM. She was sassy, loud and very healthy, we named her Katia Zoe.   At around 4 months of age I started to notice that Katia’s right eye would not focus as well as her left eye. I know someone is always telling us to not compare to other kids, but you can’t help ...

Advocate with Littlest Warrior Apparel & Giveaway!

DISCLOSURE: This post was sponsored by Littlest Warrior and product was provided in exchange for our honest opinion. As always, we only recommend and support products, shops, and people who align with our mission and enrich our community. I think that as parents of a child with a different diagnoses, we all end up advocating ...